Tuesday, December 16, 2008

Early Christmas for Las Vegas Homeless.



Prosthetic Center of Excellence Staff, friends and family created an early Christmas dinner celebration for over 300 families that are homeless. We started early Saturday morning of December 13th, cooking BBQ chicken, pasta, green bean salad, rolls, baked cookies and more. Together we enrolled friends to donate used cloths, jackets, socks and blankets. Later in the day we headed down to Owens/ Las Vegas Blvd and distributed the food and items. It was an amazing experience for all of us in sharing our time. We felt so blessed and grateful that together as a company and community, we have chosen to make a difference that truly warmed the hearts of families going through hard times during this holiday season! We encourage each and everyone of you that if you feel it in your heart and you would like to help & support the homeless, we encourage you & your friends to get together and create a community of givers during the winter and holiday season.

Wednesday, November 26, 2008

Community Answering Call For Help For Mikey


Michael Stolzenberg is a young man with a lot of courage. The avid young athlete and playful spirit suffers from a rare immune disease.
Read Carey Codd's blog about Michael
Click here to donate to Michael's Rehabilitation

Click here for video clip
Reporting Carey Codd
E-mail WESTON (CBS4) ― Just one day after CBS4's Carey Codd showed you the inspirational story of 8-year-old Michael Stolzenburg, you have delivered in way the family couldn't have imagined.

Since we aired Michael's story, viewers like you have donated much needed money for prosthetics and local performers are offering to put on benefit concerts to help Michael. All of this is in addition to a community arranged fundraiser called Miles for Mikey. It will be held on Saturday, December 6th at Tequesta Trace Park in Weston.

Michael is a young man with a lot of courage. The avid young athlete and playful spirit suffers from a rare immune disease.

Last summer Michael contracted an infection from a bacteria found in tropical climates, Chromobacterium Violaceum. Most people can fight it off. But with an immune deficiency disease the bacteria can be fatal.

"He was considered gravely ill," his mother Laura said. "We didn't know if he was gonna make it."

After seven weeks in the hospital, Michael survived. But he sustained oxygen loss to his limbs and doctors were forced to amputate his hands and his feet.

Yet the energetic and vibrant boy exudes happiness. When the family sat down to speak with us Monday, Michael mugged for the cameras and playfully joked with his parents and brothers.

When he put on our microphone he cleverly played the role of a TV reporter, saying, "Testing. Testing. 1-2-3."

It is clear the doctors may have amputated Michael's hands and feet but they did not amputate his spirit.

His father Keith says the ordeal challenged the family but he is bursting with pride over his youngest son's handling of the situation.

"It's a positive energy because Michael has the positive energy," Keith said. "Michael has been as strong as anyone could possibly be in this situation and he's a character."

"Michael gives me strength every single day," Laura said. "His spirit is amazing."

Michael is a character and he loves to play, but he is serious about returning to the sports field. "I want to get back playing sports. My friends, family, watching me, cheering me on," Michael said.

In fact, before his medical emergency Michael had been named quarterback for his pee wee football team, the Weston Warriors.

The family is making a plea for help. Michael needs high quality prosthetics to allow him to play sports and be independent. As he grows, he'll need new prosthetics. The family created the Michael Stolzenberg Rehabilitative Trust to raise money to pay for the prosthetics.

Michael is grateful for the community's prayers and donations. "They're very nice and very kind and I thank them for putting money into the trust," Michael said.

His family hopes Michael's youth will enable him to adapt to the prosthetics and be successful, not only on the athletic field but in life.

"As a family we are doing everything we can to give him a bright future," Laura said. "He will have every type of prosthetic that he needs and wants so he can do whatever he wants --- the same if not better. And in my heart, he will."

You can read more about Mikey, the fundraiser and how you can help by checking out Reporter Carey Codd's blog.

Wednesday, November 12, 2008

8 Year Old Adam Bender - “Let us play!”



My name is Bernabe Duran, moderator of this blog and I came across Adam Bender in the news and felt that it is important that people know of his vision and purpose in life. Through my personal experience these last 6 years actively participating as a Life Coach and personal effectiveness/leadership mentor, I find that people generally lack a vision/purpose for thier life, especially when it comes to disabilities. Here is a kid, 8 years old who instintively knows his purpose in life. My question and challenge to all of you is "What can you do to push through your own personal challenges to make a difference with someone you may not know? What will be the legacy you leave behind?" I truly hope you enjoy this video of inspiration and take action to be in service to help others who may be down on themselves looking for an angel like yourselves.

Here is a quote from Adam Bender himself!

"I hope that when others see me play, they will be aware that a physical challenge can be overcome when you have the desire and you believe in yourself. My wish is that all children, no matter what their ability, who want to play sports be given the chance. With the help of my family, I want to start an organization that will help kids with physical challenges be able to participate in sports. In my own words “Let us play!”"

Adam Bender

Monday, November 3, 2008

Harnessing The Power Of The Brain



Scott Pelley Reports How Brain Computer Interface May Help The Paralyzed In The Future
(CBS) Once in a while, we run across a science story that is hard to believe until you see it. That's how we felt about this story when we first saw human beings operating computers, writing e-mails, and driving wheelchairs with nothing but their thoughts.

Quietly in a number of laboratories, an astounding technology is developing that directly connects the human brain to a computer. It's like a sudden leap in human evolution - a leap that could one day help paralyzed people to walk again and amputees to move bionic limbs. As correspondent Scott Pelley reports, the connection has already been made for a few people, and for them it has been life changing.

--------------------------------------------------------------------------------

Scott Mackler was a husband, father and successful neuroscientist when he received perhaps the worst news imaginable. At the age of 40, he could run a marathon in three and a half hours, but it was about that time he discovered he had ALS, Lou Gehrig's disease.

His brain was losing its connection to virtually every muscle in his body. The near-total paralysis would also stop his lungs. He didn't want to live on a ventilator, so nine years ago he recorded this message for his two sons.

"I know the future holds lot of love and joy and pride and that life goes on and I’ll be watching you along the way and I love you very much and I'll see ya," he said in a home video.

Today, Scott Mackler's mind is sharp as ever, but his body has failed. Doctors call it "locked in" syndrome. Scott and his wife Lynn learned to communicate with about the only thing he has left, eye movement.

To signal "yes," Lynn says Scott looks at her; to signal "no," he looks away.

But recently Scott found a new voice. "Can everyone hear the PC? I apologize for the quality of the voice," he asked in writing.

Scott wrote these words, one letter at a time, with nothing but his thoughts and the help of what's called a brain computer interface or "BCI." He wears a cap that picks up the electrical activity of his brain and allows him to select letters simply by thinking about them. Then the computer turns his sentences into speech.

"I hate being helpless and when other people put words in my mouth," he wrote.

"Well, this is a very unusual interview for 60 Minutes. We've done something we never, ever do, and that is we've submitted the questions in advance because it takes Scott a little while to put the answers together using the BCI device," Pelley remarks. "Scott, I understand that earlier in the progression of this disease you said that, at the point you had to go on a ventilator you didn't wanna go on anymore, but today you are on a ventilator. And I'm curious about what changed your mind?"

"Because I can still communicate," Scott replied, with the help of the BCI device.

It isn't fast. It takes 20 seconds or so to select each letter. Scott told 60 Minutes it took him about an hour to write the answers to our 16 questions. But he writes well enough to continue his research and manage his lab at the University of Pennsylvania, where he still goes to work everyday.

"You use this system even to text your sons, for example. And I wonder what it would mean to your life today if the system somehow was taken away from you?" Pelley asks.

Scott says he couldn't work with BCI.

Asked what it has meant to their relationship, Scott's wife Lynn tells Pelley, "Well, he's happier. He can communicate with not just us, but with the world. This gave him his independence. His working, intellectual, scientist independence back."

The system was developed by neuroscientist Dr. Jonathan Wolpaw at New York State's Wadsworth Center.

Click here for the full story!

Friday, October 31, 2008

World record on crutches for Limerick marathon man Simon


Published Date: 28 October 2008
By Petula Martyn
A LIMERICK-based athlete won the hearts of supporters at the Dublin marathon yesterday when he broke a world record for the fastest marathon ever completed on crutches.
There were huge cheers from the crowd when Simon Baker crossed the finish line after completing the course in six hours and 47 minutes, smashing the record by 26 minutes.

The awe-inspiring achievement has earned the 41-year-old a listing in the Guinness Book of Records.

Simon, who is originally from London but who has made Castletroy his home, was one of almost 12,000 competitors to take part in yesterday's event.

Unlike the previous record holder, Simon ran the entire 26 miles 385 yards without the assistance of a prosthetic leg, relying only on his one remaining leg and a pair of crutches.

He lost his leg in a workplace accident four years ago and recently decided to turn his misfortune around and set about raising badly needed funds for Irish based charity, the Bubble Gum Club.

Speaking to the Limerick Leader before the marathon, Simon admitted that he thought his life was over after his leg was amputated.

"It wasn't until I was introduced to some very sick children through the Bubble Gum Club that I realised that losing a leg was absolutely nothing. Running a marathon with one leg is simple compared to what these brave little souls have to deal with every day and anything I can do to help is a pleasure"

The Bubble Gum Club looks after terminally ill children and children in crisis. The charity helps over 2,000 children every year across the country.

Wednesday, October 15, 2008

MEET MOLLY...SHE'S A GREY SPECKLED PONY



Meet Molly. She's a grey speckled pony who
was abandoned by her owners when Hurricane Katrina hit southern Louisiana . She spent weeks on her own before finally being rescued and taken to a farm where abandoned animals were stockpiled. While there, she was attacked by a pit bull terrier and almost died. Her gnawed right front leg became infected, and her vet went to LSU for help, but LSU was overwhelmed, and this pony was a welfare case.You know how that goes.

But after surgeon Rustin Moore met Molly, he changed his mind He saw how the pony was careful to lie down on different sides so she didn't seem to get sores, and how she allowed people to handle her. She protected her injured leg. She constantly shifted her weight and didn't overload her good leg. She was a smart pony with a serious survival ethic.

Moore agreed to remove her leg below the knee, and a temporary artificial limb was built. Molly walked out of the clinic and her story really begins there.

'This was the right horse and the right owner,' Moore insists. Molly happened to be a one-in-a-million patient. She's tough as nails, but sweet, and she was willing to cope with pain. She made it obvious she understood that she was in trouble. The other important factor, according to Moore, is having a truly committed and compliant owner who is dedicated to providing the daily care required over the lifetime of the horse.

Molly's story turns into a parable for life in post-Katrina Louisiana . The little pony gained weight, and her mane finally felt a comb. A human prosthesis designer built her a leg.

The prosthetic has given Molly a whole new life, Allison Barca DVM, Molly's regular vet, reports.
And she asks for it. She will put her little limb out, and come to you and let you know that she wants you to put it on. Sometimes she wants you to take it off too. And sometimes, Molly gets away from Barca. 'It can be pretty bad when you can't catch a three-legged horse,' she laughs.

Most important of all, Molly has a job now. Kay, the rescue farm owner, started taking Molly to shelters, hospitals, nursing homes, and rehabilitation centers. Anywhere she thought that people needed hope. Wherever Molly went, she showed people her pluck. She inspired people, and she had a good time doing it.

'It's obvious to me that Molly had a bigger role to play in life,? Moore said. 'She survived the hurricane, she survived a horrible injury, and now she is giving hope to others.'
Barca concluded, 'She's not back to normal, but she's going to be better. To me, she could be a symbol for New Orleans itself.

molly pic

molly 3

This is Molly's most recent prosthesis. The bottom
photo shows the ground surface that she stands on,
which has a smiley face embossed in it. Wherever
Molly goes, she leaves a smiley hoof print behind.
Forward this and share it with all of the animal
lovers that you know.

Friday, October 3, 2008

Amputee Coalition brings youth summer camp to Ohio location


Until Laura Mullen attended the Amputee Coalition of America’s summer camp, the 14-year-old had never met another kid with an amputation.

It’s an opportunity she looks forward to each summer – especially now that the camp has moved to a location near Cincinnati, Laura said.

“I especially like being able to be with amputee kids,” said the Indiana girl. “I could take off my leg anywhere and not have everybody look at me.”

Laura wears a prosthetic leg because of congenital condition that prevented her bones from developing.

The camp is just one of the many services the nonprofit agency provides in Ohio and around the country. The Knoxville, Tenn.-based organization focuses on increasing awareness about amputees in America, advocating for amputees and creating support systems for them.

Three of the 63 campers at the Joy Outdoor Education Center July 20-24 in Clarksville, about 35 miles from Cincinnati, were from Ohio. The coalition rented the camp for one week and spent about $2,000 per camper. The coalition arranges for children from around the country to attend.

Ohio was chosen because coalition staff liked the camp property and also wanted a site in the Midwest to accommodate kids coming from all over the country,

“It’s a great opportunity for kids because at so many other places, they’re not normal.” said Lonnie Nolt, a 30-year-old Columbus man who lost his leg in a motorcycle accident nine years ago. “This is one of the only places where they’re the normal.”

Nolt, who was a counselor at the camp this summer and plans to return, said he was moved when some campers told him, “This week is my favorite vacation of my life.”

Not just camp
In addition to the camps, the coalition also provides peer mentoring opportunities and workshops where amputees can learn skills designed to improve their quality of life. The agency also offers continuing education classes for medical professionals who deal with amputees.

The coalition developed the independent summer camp program in 2002 as an outreach effort for children. The organization also offers a password-protected Web site where young people with amputations can chat with each other online.

The site and the camp offer a place for kids to share thoughts and advice about their medical situations, said Vicki Foster, the manager for outreach and special events for the coalition.

“The focus of the camp is to give these children an opportunity to meet and interact with other children who have similar challenges,” she said.

To help offset costs to the coalition, Parents are asked to donate $500 if they’re able, Foster said.

The camp is open to children ages 10 to 16, she said. Teenagers who are too old to participate as campers are routinely invited to become counselors, Foster said. The practice provides great mentoring opportunities, she said.

Included in the four-day event are discussions about dating, nutrition, healthy lifestyles and peer pressure, Foster said. Attending camp often helps young people become more comfortable with their bodies, Foster said.

“Some amazing conversations take place,” she said.

Parents often report that children come home from camp and start wearing shorts rather than hiding their missing limbs, Foster said.

Confidence building
Linda Mullen, Laura’s mother, noticed a change in her daughter after her first camp experience three years ago.

“It’s given her more confidence and made her less self conscious,” she said.

Attending camp also has made her daughter more willing to take control of her situation, Linda Mullen said, noting that her daughter is more willing to make a doctor’s appointment or other arrangements for her care.

Laura, who was one of this year’s campers, said she enjoys the opportunity to hear and see how other campers lead their lives.

Camp was even better this year thanks to the new location east of Cincinnati, she said.

The center had a high ropes course that was accessible to all campers, she said.

“People that have a disability can actually do it,” she said. “You can take as long as you want.”

Amputee Coalition of America
900 E. Hill Ave., Suite 205
Knoxville, Tenn.
Phone: 888-267-5669
Fax number: 865-525-7919
Web site: amputee-coalition.org
Mission: To reach out to people with limb loss and empower them through education, support and advocacy.
Executive staff: Kendra Calhoun, CEO; and Patricia J. Isenberg, chief operating officer
Board members: David McGill, chairman; Eve Rachel Markewich, vice chairwoman; Kathleen K. Spozio, secretary; Arthur Bassin, treasurer; Jeffrey Cain; Pat Chelf; Marshall J. Cohen; Richard N. Myers Jr.; and Charlie Steele.
Paid staff: 31
Volunteers: Hundreds
Quick facts:
• The coalition advocates for the rights of people with limb loss, and has introduced legislation at the state and federal levels to ensure health insurance companies provide meaningful prosthetic coverage.
• The coalition hosts the largest annual national consumer educational conference specifically for people with limb loss.
• The coalition houses the most comprehensive library available for people with limb loss.
• The coalition’s National Peer Network trains civilian and military peer trainers and peer visitors.


Melissa Kossler Dutton is a freelance writer based in Bexley.

Thursday, September 25, 2008

Meet our staff at Prosthetic Center of Excellence!



Back left to right: Myron Calvin - Certified Pedorthist, Rob Phillips - Lab Tech, Nancy Smith - Bookkeeper, Miquel Miralles - Certified Lab Tech, Richard Brunner - Certified Prosthetist, John Cordone - Certified Orthotist, Bernabe Duran - Marketing/Business Development, Kevin Bidwell - Certified Prosthetist & Orthotist, Gwen Webb-Johnson - Owner & Certified Prosthetist/Orthotist

Front left to right: Tracie Carillo - Secretary/Administration, Tracey Flores - Office Manager, Terry Grabill - Administration.

We here at Prosthetic Center of Excellence work as a team to provide the most comprehensive patient service in the O&P Industry locally and abroad! It's important that you know, who the people are behind the scenes, as well as the individuals you see on the front lines of our practice.

We care for people and we would all like to THANK all our patients and referring clientele for your trust and confidence in our practice, We really appreciate your business!

Monday, September 22, 2008

Simple Strokes Therapy Uses Latest Tools to Bring Out Optimal Abilities


ROSALIND GUY | The Daily News

On a recent Wednesday morning at Simple Strokes Therapy in Southaven, 8-year-old Matthew Gary worked with an occupational therapist. Matthew, who has an undiagnosed developmental disorder, is learning to walk and communicate better.

He wears a blue and black glove-like device on his left arm that he uses to drum a beat along with a steady rhythm coming from a nearby computer. It’s not child’s play, though.

Matthew recently was referred to the center where he already has seen progress,which thrills his dad.

Melissa Slade, an occupational therapist with Simple Strokes Therapy, said since Matthew began the therapy sessions, she’s seen a marked improvement in his walking. Another patient, a little girl, now sleeps through the night, she added.

“Every child receives different benefits from this,” Slade said, describing the benefits of the new therapy program.

Simple Strokes Therapy recently began offering the Interactive Metronome, a brain-based rehabilitation assessment and training program. It was developed in the early 1990s to improve the processing abilities that affect attention, motor planning and sequencing.

In recent years, therapy centers like Simple Strokes Therapy have found that the program works well on children who have been diagnosed with attention deficit hyperactivity disorder (ADHD) as well as other developmental disabilities.

Steady growth
The metronome is just one of the tools therapists at the Southaven facility use to help children from newborn to age 21 reach their optimal abilities. They also offer aquatics therapy, speech therapy, physical therapy and Simply Growing, a mother’s day out program for children ages 18 months to 5 years.

The new programs are a sign of the growth Simple Strokes Therapy has seen since the husband-wife ownership team of Trey and Robin Smith opened the center five years ago, said Trey Smith.

When the couple first started the business, they mostly were doing home-based therapy. Back then, Robin Smith, who recently earned her doctorate in physical therapy, was working with children through Baptist Memorial Hospital-DeSoto’s early intervention program.

“They came to Robin and said there’s an opportunity that we would like for you to pursue,” Trey Smith said.

That opportunity was to go into the DeSoto County Schools and provide therapy.

Over time, word got out about the services she was offering, and soon other school systems – Tate County, Marshall County and Holly Springs – were calling.

“The outcomes were good, so by word of mouth she started getting more calls from other school districts,” Trey Smith said. “So it really started out with school-based therapy.”

As the patient base started to grow, the couple began to bring in other therapists to help with the workload.

“In 2003, we were approached by the Mississippi First Steps Early Intervention program to do home-based therapy for children ages 0 to 3,” Smith said. “And that is when we moved into our little facility on Goodman Road in order to have more of an office space just because we were seeing growth and we had actually increased our numbers.”

Teamwork
As they continued to experience more growth within their patient base and in anticipation of even more, the Smiths began building the current facility off Airways Place in 2005 and moved into it last year.

“We’ve grown tremendously in the last three years,” Smith said. “And the outcomes remain positive with all the children.”

Smith’s background is in financial planning and business administration, so he handles the business end of the operation, while his wife enjoys working with the children.

Together, they share joy at seeing the progress children who visit the center make.

Over the past year, more patients are being referred to Simple Strokes from outlying areas, including Memphis, and it’s a trend the owners think will continue. As they do, they said they will continue to add services as needed to suit the needs of the children.

“That’s why we do it,” Robin Smith said. “For the children. It’s all about the children.”

Friday, September 19, 2008

What if you were born with no arms and legs?


Join Central Christian Church on September 20 & 21 in las vegas, with special guest Nick Vujicic (pronounce Vooey-cheech) – a man whose faith helped him to overcome the most difficult obstacles. Hear his story of how God took him from a life without limbs, to a life without limits.

This is truly an uplifting story of overcoming challenges in life with the help of GOD! Should anyone of you be in Las Vegas come out and hear Nick's amazing story of transformation and his journey to making a difference in the world.

Here is a link to hear more about Nick and this up and coming event. Enjoy and be uplifted with an open heart!!!

Central Christian Church Event

Nick Vujicic Website

Tuesday, September 9, 2008

Phantom Limb Cure: Retraining the Brain


Correcting the distortions in the body "maps" stored in the brain that cause phantom limb pain could be a matter of changing how patients think.
By Lorimer Moseley

I once got hit just above my eye by a cricket ball, which is much like a baseball only harder. One instant, the missile was safely cupped in the wiry fists of a fellow nicknamed The Wooloomooloo Whippet, and the next instant it was rattling my braincage. An hour later, my eye feeling very swollen, I strolled around the Ladies’ Stand awaiting congratulatory warrior-worship type comments. None. Not even one. Nobody commented on my heroics or my brutal injury. I sulked off to the bathroom, the mirror of which revealed that my eye was not in the least bit swollen. I can guarantee it had felt swollen. I had even been able see the lump protruding into my peripheral vision. In fact, as soon as I saw myself in the mirror, the feeling that it was swollen, and the bit of it I could “see,” vanished. How does that work? Well, how our body feels—the awareness we have of our physical self—is constructed by the brain. It depends on the maps of the body that are held within our brain and emerges as a conscious output.
These body maps become altered in people with pathological pain. For example, in phantom limb pain, which involves feeling pain in a limb after it has been amputated, the altered maps may in fact contribute to the pain. One way to treat such pain is by directly training the brain to correct the distorted maps. Another way to treat such pains is by instructing the patient to imagine making certain movements with the phantom limb. Although we don’t know how such motor imagery works in the brain, one possibility is that it, too, corrects the distorted maps.
The Map Moves In a lovely study by neuroscientist Kate MacIver and colleagues from the University of Liverpool, 13 arm amputees with phantom limb pain underwent brain scans before and after a training program in which they imagined movements of their phantom limb during daily periods of relaxation. The key measures from imaging were brain activity evoked by: pursing the lips, opening and closing the intact hand, and opening and closing the phantom hand. Why scan the brain of people with upper limb pain while they purse their lips? There is very good evidence that in amputees with phantom limb pain, the brain maps reorganize so that the representation of the lip (the “virtual” lip) shifts to where the missing hand should be—about four millimeters away. In amputees without phantom limb pain, there is no, or very little, shift. A shift of that size may seem trivial, but considering that the sensory cortex has about 20,000 brain cells per cubic millimeter, it actually represents a monumental change in the response profile of brain cells.
Here is what the team found before training: When the healthy controls pursed their lips, they activated their virtual lips. When they imagined moving their hand, they activated their virtual hand. No surprises there. In contrast, when the amputees pursed their lips or moved their phantom hand, they activated both their virtual lips and their virtual hand. They also activated parts of the sensory cortex that normally represents the other side of the body—the virtual opposite hand if you like. These results are interesting enough but not altogether surprising. They corroborate a growing body of literature that demonstrates that people with pathological pain have distorted maps of the body, or a generalized disinhibition of parts of the brain (reduction of the normal inhibitory control that keeps brain activations in check).
The real punch of this study lies in the changes that were imparted by training. Here is what they found after six to 12 weeks of the training program: nine of the 13 reported that the intensity of their pain had been halved, the amputees started to show the same activation pattern during lip pursing and phantom hand movements as the healthy controls do, and the extent of pain relief and the extent to which brain activations returned to normal were correlated.
One obvious limitation is that, although this study had healthy controls in training for comparison, it did not have a control condition of patients and healthy subjects who did not get the training. So we don’t actually know for sure whether the training program was important in imparting the effects. That said, anyone in the know would be absolutely gobsmacked if it didn’t. Perhaps a more interesting issue is what contribution the two main components of the training might have made to the effect. The obvious aspect is the imagined movements: we know that imagined movements involve the same brain mechanisms as executed movements and we know that practising movements refine those mechanisms. This study clearly suggests that the same processes apply to phantom limbs as well as intact limbs. The less obvious facet of the finding is the relaxation/body scanning part, which actually comprised the bulk of the training sessions. Simply thinking about body parts activates their virtual counterpart—one can’t feel one’s body without using neurons that represent it. Honing in on a particular body part requires inhibitory processes, the loss of which might underpin the extravagant activation patterns that were observed in the pre-training scans. I hope this research group teases out these components in its next study!
The Mutable Brain:
Regardless of the active component, this study gives insight into a possible mechanism of pain relief for people with phantom limb pain. In itself, this finding is terrific, because phantom limb pain is common in amputees, it is resistant to drugs and it can be at least as debilitating as the absence of the limb.The study also corroborates a growing literature on the lability of the human brain. Although brain plasticity might underpin the remapping that contributes to phantom limb pain in the first place, the very same plasticity can also be exploited to return the brain to normal and reduce phantom limb pain. Psychiatrist and psychoanalyst of the Columbia University Center for Psychoanalytic Training and Research Norman Doidge refers to this effect as “the dark side of plasticity.”

Finally, the study raises the bar for those of us trying to develop better and better ways to treat pathological pain conditions. Nevertheless, we still need to improve these protocols. This study reminds us that we can teach an old dog new tricks, but can we get it into the circus?
Are you a scientist? Have you recently read a peer-reviewed paper that you want to write about? Then contact Mind Matters editor Jonah Lehrer, the science writer behind the blog The Frontal Cortex and the book Proust Was a Neuroscientist.

Wednesday, August 27, 2008

Acclaimed rock climbers help USF craft better prosthetics


Media General News Service
Cara Fortunato, a nationally-ranked Extremity Games amputee rock climber, scales a climbing wall using her fully articulated prosthesis. Fortunato visited Tampa Friday to assist USF in conducting a study of the metabolic demands of rock climbing with unilateral transfemoral amputees. The goal of the study was to find out which condition works the best and is the most energy efficient--no prosthesis, stubby prosthesis-foot forward and foot backwards, and full articulated walking prosthesis-knee locked and knee unlocked.


By B.C. MANION Media General News Service Published: August 27, 2008


TOWN ’N COUNTRY — Coming off a recent win at the Extremity Games in Michigan, Cara Fortunato quickly scaled the 24-foot wall at Vertical Ventures. The athlete wasn’t aiming for a personal best. She was doing her bit for science. The female rock-climbing champion flew into Tampa for a day last week to help researchers figure out what kind of artificial limb works best for amputees in their quest to climb rock walls. She’s one of three nationally ranked amputee rock climbers who have volunteered in the University of South Florida research project. Each climber scaled the wall at the indoor rock-climbing gym near Tampa International Airport under five conditions. They wore a stubby leg prosthesis with a foot facing forward and one with a foot facing backward; they wore a fully articulated prosthetic leg with a knee lock and one without; and they wore no prosthesis at all. They also wore masks equipped with oxygen sensors to track how much effort each climb took. The goal was to find which condition works best, said Jason Highsmith, a visiting assistant professor at USF’s School of Physical Therapy & Rehabilitative Sciences. “We don’t know if one is easier. We know the stubby seems to be preferred by a lot of people. But a lot of people climb with no prosthesis,” Highsmith said. The value of the research extends beyond helping amputee athletes perform well, he said. Rock climbing is one of the therapies used to help wounded war veterans from Iraq and Afghanistan to resume active lives, Highsmith said. “The three major military hospitals have all invested in climbing walls,” he said. “They’re looking for lifetime fitness pursuits (to offer to injured veterans). This is something you can do as a lifetime pursuit.” The rock-climbing research is one element in a $1 million federal Department of Education demonstration project granted to USF. Other parts of the demonstration project included developing an artificial hand that kayakers can use, testing artificial knees and creating educational materials, Highsmith said. The educational materials, available free through the project’s Web site, provide practical information for people who are new to the world of prosthetics and orthotics, and to those well-versed in the topics. The site contains everything from common terms, to what acronyms mean, to what new amputees can expect, to where they can turn for funding and more information. Fortunato, who spends most of the year in Crofton, Md., and the rest in Bonita Springs, met Highsmith a few years ago and said she wanted to help him. “What they’re trying to prove and test will help a lot of climbers,” she said. Ronnie Dickson, another nationally ranked climber, also volunteered his time and skills. “We have a lot of war veterans coming back. This is one of the choice sports that some of the guys have been taking up,” Dickson said. “One of the best ways to get through rehab is to really focus on something, to find something that’s physically rewarding and challenging. This seems to be a sport that amputees can take up pretty well.”

Wednesday, August 20, 2008

Young amputees leap over limits


With record-setting runner as role model, foundation prompts kids to try sports

Ashley Messick, left, of Durham gets a little help from her mother, Ashley Messick, right, on a jump rope routine. Ashley, 9, finds it easier to easier to jump rope without her prosthetic leg. Staff photo by Corey Lowenstein
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By Jay Price, Staff Writer
DURHAM -- After 9-year-old Hannah Messick took off her leg to jump rope on just one, 7-year-old Haley Harris had to try it too.
A small experiment, but exactly what organizers of a Saturday program for child amputees were trying to do: spread the idea that it's OK to try just about any physical activity despite missing limbs.
The Children's Amputee Foundation, started by the family of an elite disabled runner from Greensboro, Andrew Lester, invited area child amputees to Trinity School of Durham and Chapel Hill for a day of sports and games.
Lester, a rising senior at Campbell University who is missing his lower right leg, competes in paralympic track events around the globe and set a world record in the 1,500-meter run.
He told the 10 child amputees who came Saturday that he started running after attending a similar event featuring amputee athletes and that he wanted to do the same for them.
Two other high-achieving young leg amputees -- triathlete Kelly Bruno of Durham and UNC student and Morehead Scholar Stamp Walden of Vass -- also spoke. Bruno told the kids that she played soccer, baseball and basketball, swam, ran track and practiced martial arts before turning to triathlons. In less than two weeks, she is expected to become the first disabled ball girl at a U.S. Open tennis tournament.
The point, though, isn't necessarily to aim for high-level sports but to realize an amputation doesn't mean serious limits to physical activity, Bruno said.
"It doesn't matter what you do, just find something and pursue it," she said.
Then she, Lester and Walden helped the kids try kickball, freeze tag, basketball and foot races.
The event was as much for parents as for the young amputees. The kids often have fewer fears about trying new sports than their parents have about letting them, said Nancy Payne, limb loss clinical nurse specialist at Duke Medical Center.
"The parents will be concerned about what the kids can do and worry that they'll hurt themselves, but when you see this kind of thing," she said, gesturing at a field full of shrieking kids playing kickball, "it's a no-brainer.
"In truth, the kids can do about anything they want."
Physical activity is important for kids missing a limb for the same reasons it's important to other kids, Payne said. An amputation can lure kids into a sedentary lifestyle, especially without role models like Lester, she said.

Monday, August 11, 2008

Camp For Amputees Provides Fun


Web Editor: Kara Matuszewski Posted By: Kristin DiCara, 1 day ago ROME
(NEWS CENTER) -- Camp No Limits teaches amputees that they can still do the same things everyone else can.

Click here for Video

Volunteer Chad Thompson said as campers make new friends and see what other kids can do, they learn to set goals and do activities they never thought they could.

The volunteers teach the campers how to do their daily living activities, either with or without a prothesis.

"I'm here to bond with them, and I'm here to show them all my different types of prothesises and just let them know that there's nothing they can't do," said Carrie Davis. "My motto is, if you don't have an arm, you don't have an excuse, because there is something that is going to help you achieve any goal that you have."

Camp No Limits is a place where kids with amputations can come, and be aware that they're not the only kids out there, said Cameron Clapp. "And also, it's a place where they can build confidence, that they can do anything they want," he said.

Camp no limits has grown from only 3 campers a few years ago, to nearly 40 this year in Maine. Other Camp No Limits are run in California, Idaho, and Florida.

NEWS CENTER

Wednesday, August 6, 2008

Amputee Marine returns to combat duty



A year after Cpl. Garrett Jones lost his left leg to a bomb in Iraq, he has rejoined his unit in Afghanistan. Improved medical care and prostheses -- and his determination -- made it possible.
By David Zucchino, Los Angeles Times Staff Writer
August 6, 2008
CAMP BARBER, AFGHANISTAN --

Just over a year ago, Cpl. Garrett Jones was one of thousands of Marines slogging through a tour of duty in Iraq. Today, he is deployed with the same unit in Afghanistan, but he serves now with an unusual distinction.

Garrett with friendsDozens of insurgents killed in Afghanistan battle
U.S. prepares to boost its forces in Afghanistan
Deadly Taliban attack on U.S. bases raises concerns
On July 23, 2007, Jones was on foot patrol near the Iraqi city of Fallouja when he was injured by a roadside bomb. After the attack, his left leg was amputated above the knee. He developed infections and fevers. His weight dropped from 175 pounds to 125. At 21, Jones faced months of painful rehabilitation and a likely end to his service in the Marine Corps.

One year later, Jones is walking smoothly on a prosthetic leg. He not only continues to serve on active duty, but he has worked his way back to a war zone, serving with his Marine battle buddies in Afghanistan.

In previous wars, Jones would have received a medical discharge and returned to civilian life. But in the Iraq and Afghanistan conflicts, the Pentagon has made it possible for some amputees to return to duty -- and for a few to deploy overseas again. Advances in medical care and high-tech prostheses have enabled amputees to function far better.

Jones said he couldn't bear the thought of not deploying with close friends in his unit after he learned last fall that they would be sent to Afghanistan. He also wanted to pave a path for other amputees and show them what's possible, he said.

"I want to be someone an injured Marine can talk to," Jones said. "And I can tell them: 'Times will be rough and not always easy as an amputee, but you can still make great things out of an unfortunate situation.' That's what I want to do."

Sgt. Matthew Leonard, who served with Jones in Iraq and now works beside him at this desert base in southern Afghanistan, said Jones has earned a special status among Marines because he demanded to be sent back to combat.

"He didn't just choose to come -- he fought to come," Leonard said. "We bled and sweated with this guy in Iraq, and he wants to be with us more than anything. That's awesome."

Jones, 22, of Newberg, Ore., is among a small number of Marines who have lost a limb in Iraq or Afghanistan and returned to duty in a war zone. (A Marine Corps spokesman said the Corps is unable to provide accurate figures.)

Sixty-two soldiers, airmen or sailors have lost limbs in combat and returned to active duty, according to spokesmen for the Army, Navy and Air Force.

No information was available for the number of those amputees who have returned to duty in Iraq or Afghanistan; some estimates put the number at about a dozen.

Nearly 900 of the 33,000 total U.S. wounded in Iraq and Afghanistan have lost at least one limb, according to the Pentagon. Partly because of manpower shortages and partly to retain veterans with combat experience and other expertise, the military has cleared the way in recent years for amputees and other injured service members to remain on active duty.

Unit commanders decide after consulting military doctors what type of duties to assign amputees, either in the U.S., on an overseas base or in a war zone, said Lt. Col. George Wright, an Army spokesman.

Jones said he had to pass medical tests and prove in training that he could walk effectively, get in and out of a Humvee and perform other physical tasks. Once, while in a simulator that mimics a Humvee rolling over, his prosthesis popped off, he said. He reattached it and continued the drill.

Jones didn't get his first prosthesis until November. By the end of December, he had learned how to snowboard again, a sport he had enjoyed for years. He plans to compete in freestyle snowboarding in the 2010 Paralympics in Vancouver, Canada.

"I can do stuff on a snowboard I don't think any other amputee can do," he said. He would compete to win, which would create "good publicity for the Marine Corps," he said.

"He's amazing -- he can do anything," said Cpl. Paul Savage, who works with Jones here at the headquarters for the 2nd Battalion, 7th Marine Regiment, which is based in Twentynine Palms. "There are no limitations with this guy."

Jones looks like a lot of other Marine enlisted men on the base -- young, fit, suntanned and energetic. Except for a limp, he blends in easily. He is engaging and forthright. He discusses his injuries coolly, without a trace of self-consciousness.

"I roll with the punches," he said. "I'll always have some pain and discomfort, and I've accepted that."

For more on the story
click here.

Tuesday, August 5, 2008

Operation Amped


Military amputees paddle to catch a wave during Operation Amped, a surf camp for injured service men and women on August 2, 2008 at Camp Pendleton, California. Patients from Naval Medical Center San Diego (Balboa) with amputations, spinal injuries and traumatic brain injuries learn to address cognitive, physical, and psycho-social skills during the surfing instruction as part of their rehabilitation program.

Tuesday, July 22, 2008

Lincoln Park amputee is an extreme competitor


Rock climbing contest athlete's latest challenge
By Tehani Schneider • Gannett New Jersey • July 19, 2008

LINCOLN PARK —Brooke Artesi took up rock climbing last winter, tackling the various climbs at New Jersey Rock Gym in Fairfield after becoming a certified belayer.


Scaling 30-foot walls can be tricky, but Artesi, of Lincoln Park, is careful to navigate the artificial hand and footholds. And pressure under her right shoe is a telltale sign that her prosthetic foot has found its mark.

"With a harder route, the (rocks) are smaller and farther apart," said Artesi, 29. "It happens sometimes that I can't do it and I slip off."

But the Rockaway native has committed to climbing a few hours a week in preparation for her first Extremity Games -- an extreme amateur athletic competition for amputees or individuals with limb disabilities.

The event will begin on Thursday in Michigan, and Artesi will compete in the top rope rock climbing competition in Pontiac on Friday. Top rope uses a belayer, or the person holding the rope, to secure a climber.

"Hopefully I'll do well, but I want to have a good time and have it be a learning experience, too," Artesi said.

"There are no other amputees at the gym, so I don't know what to expect ... Maybe next year it'll be different and I'll push (my competitive edge) up."

Artesi, who was 15 when she lost her right leg below the knee in a train accident in Morristown, learned of the Extremity Games through her employer, Garden State Orthopaedics.

Eager to meet amputees from across the country, Artesi -- who has worked as an orthotist, fitting patients with braces for the past six years -- booked her trip and began a regular schedule at the Fairfield gym with her husband, Steven Pezzetta.

Garden State, which has offices in Oakland and Morristown, is sponsoring her trip to the Midwest.

"I really wanted to go," she said. "I had just heard wonderful things from people, colleagues who've been there. You meet so many other people, amputees, people my own age. Working here, I meet a lot of amputees, but they're not always my own age."

The Extremity Games, which is similar to the X Games, was created in 2006 in Orlando, Fla., by College Park Industries, a manufacturer of prosthetic feet, said Beth Geno, the Games' development manager.

Competitors from the United States, England, Germany and Holland vie for gold, silver and bronze medals, as well as prizes and money in many sports, categories and styles, Geno said.

Instructional clinics for newcomers also are held, along with an interactive exhibit area and featured demonstration sports, she said.

Approximately 120 athletes are expected to participate this year, and rock climbing and kayaking are the top two sports for participants, she said.

"We see many new faces, as well as many returning athletes," Geno said.

While the Extremity Games will be Artesi's first challenge in rock climbing, it won't be her first venture into competitive sports. She has participated in various 5K and 10K races as a runner, and taken up tennis and swimming over the past few years.

With running, Artesi dons a Flex-Run, a prosthesis specifically designed for the task. Swimming requires a waterproof prosthesis, but rock climbing allows her to use an everyday prosthesis protected by her climbing shoe.

"I have a whole bunch of different legs," Artesi quipped. "All you really want for the rock climbing is to have a stiff toe."

Artesi will be joined and cheered on in Michigan by Sharon Andrews, her prosthetist for the past five years and her co-worker at Garden State Orthopaedics.

"I'm really, really excited," said Andrews. "I think it's going to be awesome just to see her climbing up the wall. Even if she just doesn't win, it's just a big statement to be able to go."

Andrews and Louis Haberman, Artesi's first prosthetist, have ensured that the suction socket of Artesi's prosthesis fits properly over her stump throughout her training.

On average, amputees receive new prostheses every few years because of changes to the residual limb with weight loss or gain, Andrews said. With an athlete like Artesi, prosthesis maintenance is key to her training and performance, she said.

"She needs to maintain the way the socket fits, since her limb is always in flux," Andrews said. "Some days (her limb) can be a little bit bigger than other days ... I often have to tell Brooke to take it easy because she'll work through if something's bothering her."

Artesi's dogged determination is a trait that Haberman, a Denville resident, recalled seeing when he first treated her two weeks after she lost her leg.

A sophomore at Morris Knolls High School in fall 1994, Artesi was boarding a train stopped at the Morristown station on Oct. 23. The train began moving and crushed her right ankle beyond reconstruction, requiring her leg to be amputated below the knee.

Haberman remembered the younger Artesi as an adolescent who demanded her first prosthesis match her colorful platform shoes. Now, she has become a skilled co-worker whose desire to learn about prostheses has manifested into an adult passion for the field, he said. Artesi plans on returning to school in the fall to become a certified prosthetist.

"She went from a defiant teenager with 4-inch multi-colored shoe lifts and orange hair to a demure young woman with professional training and great care for her patients," Haberman said.

"She's just a remarkable lady. She's overcome a lot of hardship and difficulty to achieve success."

Many amputees, Haberman said, receive their prosthesis and attempt to resume their lives to the best of their abilities.

"A lot (of amputees) do not choose the route that (Artesi) has chosen -- to go further and do more. I can't respond to what the motivation is, other than the desire to achieve, overcome and excel," he said. "This is just who she is."

For Artesi, competing at the Extremity Games and taking part in sports, in general, are motivating techniques for her own patients.

"I'm a good role model for our patients to stay active," she said. "They see me and know they can do things, too."

Friday, June 27, 2008

Scout Bassett: Succeeding in Life, One Step at a Time


Kids often ask Scout Bassett, of Palm Desert, California, if she wishes she had two normal legs. Bassett, 18, answers, “No. I have never known anything different, and it would seem weird to me. Besides, if it weren't for the missing leg, I wouldn't have the opportunities I have today!"

What she means is she has learned important lessons about overcoming big challenges to reach your goals. “When you are missing a leg, it teaches you to appreciate little things—like being able to walk and run," she says.

Scout has faced big challenges. Born in China, she was left at an orphanage before her first birthday suffering from terrible burns. Her right leg was especially damaged, and doctors amputated it above the knee.

She remembers being hungry all the time at the orphanage. As soon as she was old enough to get around, she was put to work mopping floors, feeding babies, and washing dishes.

And she had to do all that with an artificial leg that didn't work very well. “It was made of things you'd find in your garage," she recalls. “Belt straps, masking tape, nuts and bolts. It didn't feel very good, and clanked, and even fell off sometimes."

Then, when she was seven years old, a family in Michigan adopted her. Everything about her new life in the United States was better, including the improved artificial legs her parents got for her.

First she got a better leg for everyday activities. It was okay for some things, but she still couldn't play soccer or basketball.

When she was 14, she got a high-tech leg made for sports and put it to the test right away in a race for disabled athletes. “I remember being terrified because this was my first time," she says. “But my doctor said, ‘You have to start somewhere.'"

Scout was waiting nervously for the race to start when athlete Sarah Reinertsen came up and said, “I've been doing this for a while. Let me give you some tips."

Reinertsen, who lost her leg when she was seven, is the first woman amputee to finish the Ironman triathlon in Hawaii. In the 2005 race, she swam 2.4 miles (3.9 kilometers) in the ocean, biked 112 miles (180 kilometers), and ran 26 miles (42 kilometers). She works with an organization called the Challenged Athletes Foundation to help support people like Scout.

Reinertsen's encouragement changed the teenager's life. She lost that first race, but gained the confidence that she needed to compete. If Sarah could do it, she could too.

Training hard, she improved her strength and skill step by step. She even took up golf and tennis, and by high school, she'd gotten good enough to be on the varsity teams.

Now living in California, Scout runs competitively and also finds time to share her story with school groups.

“There are days when I study until 1 a.m. and get up at five to swim and train, and it is tough," she explains. But she has a motto that keeps her going: “The task ahead of you is never greater than the strength inside you."

“Sometimes people look at someone like me or at Sarah and think they have nothing in common with us. I tell them that even if you aren't physically challenged, everybody has challenges of some kind—maybe with family, or homework, or friends."

“No matter what it is, you can overcome that obstacle," she says. “Everything you need is inside your heart. Take small steps. As time goes by, the steps will get bigger and you will reach your dream."

Tuesday, June 24, 2008

Amputee's breakdance showdown!



I am simply amazed at the incredible determination of individuals that show total committment to living thier lives to the fullest. When you create a vision for yourself no matter what the obstacles or challenges, you are able to create miracles that make a difference for yourself and everyone else thats looking for a little hope. Thank you to all of you who dare to be dreamers who make it a reality!

PCE.

Wednesday, June 18, 2008

Amputees Get Mirrored Relief at Walter Reed

posted 2:59 pm Tue June 17, 2008 - WASHINGTON


Doctors at Walter Reed Army Medical Center have found a new tool to help amputee patients lose what they call "phantom pain".

Every night Army Sergeant Dale Cherney feels the sensation of sharp pins where his right foot used to be. "There's a stabbing pain or spiking pain that goes from one to seven on a scale of 10, that's not fun."

Cherney lost his leg in Iraq (webnews) last fall and his phantom pain began immediately. Recently doctors at Walter Reed started him on a new treatment using a full-length mirror. It's placed between his legs so when dale looks down, it looks like he still has both limbs. Every day for 15 minutes, he looks at the reflected image of his intact foot while trying to move his amputated foot.

"When they see the limb moving and they try to move it, vision seems to be overriding any mixed signals that the brain is getting," said Associate Professor on Neurology, USUHS, Dr. Jack Tsao.

Every patient using the mirror therapy in clinical trials at Walter Reed have had reductions in phantom pain.

"So, not only is the therapy inexpensive, we're able to save money and get people off medicine they don't need to take," said Dr. Tsao.

Army Sergeant Nicholas Paupore saw results within a week. Before that, he'd suffered from phantom pain every single day. "It would rush from where my toes would be all the way up the back of my leg," he said, "from back of leg all the way down to missing foot."

Now, Paupore is off his medications and has very rarely experienced phantom pain. "It's a process you have to go through, if you're dedicated it does work."

Army Sergeant Dale Cherney hopes it will stop his phantom pain as well. "I'm willing to do anything, if it works, I'll do it."

Mirror therapy is also being used for arm amputees at Walter Reed. In addition, a clinical trial is underway for double-leg amputees who use another person's let to visualize their missing limbs.

Monday, June 16, 2008

Paralympian April Holmes Transforms Tragedy into Triumph


By CHICO C. NORWOOD

April Holmes
On a cold, wintry January day in 2001, April Holmes’ life changed in the blink of an eye. One moment she was standing with her boyfriend on a train platform in Philadelphia waiting for a train to New York. The next minute she found herself lying underneath the 500-ton steel behemoth. Holmes has no memory of how she got there.

“I was on the platform trying to get on the train and before I knew it I was underneath the platform with the train actually resting on my leg. I do remember I was the last person to attempt to board the train. I remember it took them a few times to actually lift the train up and when that didn’t work then they tried to just back the train up,” she said. “I don’t know what happened. I just slipped on something and was underneath the platform and the train was on my leg.”

The next thing the Somerfield, N.J., native remembers is waking up in the hospital with the physician telling her that her left leg had been amputated below the knee.

A former high school track standout as a 400-meter state champion and collegiate All-American,

Holmes says the news that she had lost part of one of her legs was jolting.

“It was very difficult. I didn’t know anyone who had had their leg amputated. I didn’t know what life entailed for someone missing a limb. I remember loving track and basketball and one of the first things I said when I found out my leg had been amputated was ‘I’ll never be able to run or play basketball again,’” Holmes said.


The Bible says all things work together for good, and in the case of April Holmes, who says it was through a strong faith in God that she was able to endure, all things have worked for good.

Several days after her the operation to remove her leg, the doctor who performed the surgery gave Holmes several magazines about the Paralympic Games, a multi-sport event for athletes with physical, mental and sensorial disabilities, including mobility disabilities, amputees, visual disabilities and those with cerebral palsy.

“At first I thought he was crazy because I didn’t know anything about the Paralympics,” she said of the competition that is held every four years, following the Olympic Games, and is governed by the International Paralympic Committee (IPC).

After a few conversations with the doctor and her sister, Holmes dared to dream. Two months after the accident, she received her walking leg. By April 2001, she was jogging on a treadmill. In April 2002, she entered her first Paralympic track and field competition.

Today, Holmes is the world’s fastest female amputee. She holds world records (women’s T44 classification) in the 100-meter, 200-meter and 400-meter dashes. In the 2006 U.S. Paralympics Track and Field National Championships in Atlanta, she shattered her own world records in the 100-meter and 200-meter dashes. At the 2006 IPC World Championships in Assen, Netherlands, Holmes put in gold winning performances in the 100-meter and 200-meter races. At the 2004 Paralympic Games in Athens, she brought home a bronze medal as she broke the American record for the long jump. This year she will represent the United States from Sept. 6-17 at the Paralympic Games in Beijing, China, where she is favored to bring home the gold.

Holmes’ track and field exploits have landed her a lucrative contract with basketball great Michael Jordan’s Jordan Brand, a division of NIKE Inc., because the brand touts itself as being “synonymous with style, grace, athleticism, and defying the odds of greatness and abilities.” Holmes, reportedly, is the first woman to be signed to the high-profile label that also boasts such stars as Utah Jazz forward Carmelo Anthony, the Boston Celtics’ Ray Allen, N. Y. Yankee Derek Jeter, Dallas Cowboys’ Terrell Owens, and the New Orleans Hornets’ Chris Paul.

Her performance on the field has also translated into celebrity off the field for the self-proclaimed loner. Holmes travels around the country sharing her life-changing experience with children, other amputees and soldiers returning from war.

“I’ve been blessed with the opportunity to be able to touch people’s lives and that to me is one of the most important things you can do in life. I appreciate the opportunity that I can go out and speak to kids, and go to hospitals to speak to people who have lost a limb. Also, there are a lot of war veterans who are coming back and have lost a limb. To be able to impart to them that there is life after amputation, that is the great thing I have been able to do,” she said.

Holmes was this year’s national spokesperson for Disability Insurance Awareness Month, which was held in May. According to the April Holmes Web site:

• 54 million Americans are physically disabled

• One of four children do not participate in elementary or secondary physical education programs

• 143 million Americans are family members of persons with disabilities

• 66 percent of Americans are disabled for more than six months of their life

• 3,000 people daily become amputees.

In response to these statistics, Holmes has established the April Holmes Foundation “to assist disabled individuals to reach their goals by encouraging them to rise above any obstacles that will give them an opportunity to develop to their full potential; thus, realizing that the opportunity of a challenge is rewarded with success.”

The foundation is currently holding an essay contest for the disabled. Participants should write a 230-word essay in response to the following question as it pertains to their level of disability: “If your Jordan shoes could talk the moment you put them on, what would they say about you? Where would they take you? Who would you inspire? What story would you tell?” The contest ends June 23.

What advice does Holmes offer, not just to the disabled, but to everyone?

“Keep dreaming and keep living. Everyone falls down at one time in your life, no matter where you are in life. No matter how much money you have, no matter where you came from, you fall down in life. And sometimes it can be a physical fall down and sometimes it can be a mental fall down. If you keep dreaming and keep faith, good things will happen to you,” she said.

For more information about April Holmes and her life-changing journey, the April Holmes Foundation and the essay contest, visit www.aprilholmes.com.

Tuesday, June 3, 2008

Amputees leave Tustin for cross-country bike ride



Four riders, all with at least one leg amputated, set off this morning toward New Jersey.
By ELYSSE JAMES
THE ORANGE COUNTY REGISTER
Comments 0| Recommend 3

TUSTIN – Four amputees left Tustin Monday morning on bicycles and headed to Tinton Falls, New Jersey – about 3,500 miles away – with plans to stop at hospitals and amputee support groups to provide inspiration. It's part of the seventh annual Amputees Across America bike ride. They are expected to reach Tinton Falls in early August.

A.J. Johnson, a double amputee, is filling in for Doc Milligan, who sustained a hip injury about a month ago and was unable to ride his bicycle. Johnson lost her second leg to infection last year and was in rehabilitation to learn to walk when she agreed to join the riders.

She plans to learn to ride as the group travels.

"I'll try every day and every day I get closer," said Johnson, 31.

"One day I will hit it and be gone," she said of catching the second bicycle pedal. "I do what I can do and I think that's a good message to get out to anybody."

Green, white and magenta balloons framed the podium as the four Amputees Across America riders spoke about their inspiration for the ride and prepared for their journey during a ceremony at the HealthSouth Tustin Rehabilitation Hospital on Yorba Street.

Tustin Councilman Tony Kawashima presented a certificate of appreciation to the riders. About 50 people filled the hospital during the ceremony.

Paige Looney, a 13-year-old who has had both her legs amputated, has been joining the send-off for seven years. This year, Johnson and riders Joe Sapere, Abel Cruz and Lukas Myers gave her a pink Amputees Across America hat and made her an honorary rider.

As they travel across the nation, Looney keeps in touch with them through e-mail. One day, she plans to ride with them.

"They are my favorite guys because I help them a lot," she said with a smile. "They are the best guys. They're just like me."

Sapere formed Amputees Across America in 2002 with HealthSouth Corp. to inspire people. Riders will stop at 26 HealthSouth Rehabilitation Centers, including southern Arizona, central Kentucky and New York. The ride starts in Tustin because, said spokeswoman Lee Fallon, Tustin is centrally located. The other California HealthSouth hospital is in Bakersfield.

Myers, 19, joined the group after his leg had been amputated in 2002. The Amputees Across America visited the Colorado Springs area during the 2003 ride.

"Their attitude on life and hearing their stories and what they do, it changes your attitude," Myers said.

Information: www.amputeesacrossamerica.com.

Contact the writer: 949-553-2918 or ejames@ocregister.com

Monday, May 19, 2008

Amputee's prosthetic limbs spark tech debate


UNION-TRIBUNE
May 19, 2008

ANDREW YATES / Getty Images
Oscar Pistorius was born without fibulas and had his legs amputated below the knee at 11 months old.

Double-amputee sprinter Oscar Pistorius won his appeal Friday and can compete for a place in the Beijing Olympics.

Oscar Pistorius literally does not have a leg to stand on, but he runs as if he were fleeing a fire.

The world's swiftest amputee sprinter is so fast that he has forced the sports world to wonder whether he's working with a disability or an edge; whether technology has trumped the human condition with advances in prosthetics; and what all of that might mean to races down the road.

The Blade Runner, as Pistorius is known, is where the interests of compassion and competition collide. The 21-year-old South African was born without fibulas and had his legs amputated below the knee at 11 months old. He has adapted so well to his artificial lower limbs, however, particularly to the cutting-edge “Cheetahs” developed in Iceland, that the international track federation (IAAF) has sought to legislate him out of its able-bodied competitions, including the Summer Olympic Games of Beijing.

Pistorius prevailed on appeal last week, but the Court of Arbitration for Sport was careful to frame its decision in the narrow terms of existing evidence rather than setting a broad precedent. Hollywood's “Iron Man” might be fiction, but scientific enhancement is indisputable fact.

“I think the principle is that you have some kind of fairness in competition,” said Dr. Lawrence Hinman, who teaches Ethics at the Frontiers of Science at USD. “The empirical question is: Do the prosthetic limbs give someone an unfair advantage? Eventually, they will. . . .

“My own feeling is to say, unless it's pretty clear that this gives him an unfair advantage, that he should be allowed to compete.”

AdvertisementGerman Professor Gert-Peter Brueggemann, who began testing the J-shaped, carbon-fiber “Cheetahs” for the IAAF last November, says Pistorius' advantage is already significant. Brueggemann's data indicates Pistorius' limbs use 25 percent less energy than able-bodied runners to run at the same speed and that Pistorius requires 30 percent less mechanical work to lift his body.
“I did not expect it to be so clear,” Brueggemann told Die Welt.

What Brueggemann considers to be clear, though, Robert Gailey continues to find murky. Gailey, a physical therapist at the University of Miami, told The New York Times last year that a prosthetic leg returns only about 80 percent of the energy absorbed in a stride, compared with as much as 240 percent for a normal leg. Gailey questions, too, whether the IAAF's concerns are based on competitive advantages or cosmetic appearances.

Unlike Lasik eye surgery or arthroscopic joint repairs, prosthetic limbs are not easily concealed when worn with a track suit. Each of these innovations is intended to enhance performance, but only the prostheses alters a sprinter's silhouette.

“Part of what makes it a little more difficult for Pistorius is the prosthetics look incredibly impressive,” Hinman said. “It's that futuristic design. If they looked like wooden legs, there wouldn't be any question.”

Should Pistorius qualify for the Summer Games, he would become the first amputee to compete in an Olympic track event. Yet it's worth noting that gymnast George Eyser won three gold medals in the 1904 Summer Games in St. Louis while operating on a wooden leg. San Diego State's Marla Runyan, legally blind, became the first Paralympian runner to compete in the Olympic Games and finished eighth in the 1,500 meters in the 2000 Games of Sydney.

“I think the Paralympians kind of get short shrift,” said swimming executive Mike Lewis, who once managed Paralympic sports for the U.S. Olympic Committee. “These are world-class athletes. They train as hard. They have the same level of commitment. It's not merely a feel-good achievement.”

Lewis, who earned degrees from UCSD and San Diego State, admits to being “conflicted” about scientific shortcuts. Yet instead of viewing the technology in isolation, Lewis looks at the totality of the Paralympic athlete's experience, at the “totally different variables” that enter into their equations.

“Biomechanically, there is that purported advantage (to prosthetic limbs),” Lewis said. “But that's for the device itself. At the end of the day, it's the user who sits on top of that device.”

By any standard, Pistorius is an extraordinary case. He owns the world Paralympic record at 100, 200 and 400 meters, and his best times at 100 and 200 meters (10.91 and 21.58 seconds) are better than those run by the women's gold medalists at the 2004 Summer Games in Athens.

Though he has yet to meet Olympic men's qualifying standards at any distance, Pistorius could still be chosen to represent South Africa in the relays.

“It's genuinely a tough case,” Hinman said. “Even if it didn't (make a decisive difference), he might get better. It's hard to know which you credit to the prosthetic device and what you credit to incredible determination.

“There are plenty of people with that same level of determination who don't get so far.”

Though the race is not always to the swiftest, neither should it be appropriated by the smartest engineer. Much as Oscar Pistorius is an inspiration, he also poses a problem.

Monday, May 12, 2008

Disabled Iraq War vet eyes spot in 2008 Paralympics


By Sal Ruibal, USA TODAY
COLLEGE PARK, Md. — As the swimmers begin to take their places at the start line, they nervously adjust their caps and tug at their swimsuits.
Melissa Stockwell walks across the wet tile floor to her lane, bends to stretch her back, then carefully removes her left leg.

Balancing on her right leg, she crouches as the starter raises the gun, then explodes into the water as the gun's sharp crack echoes across the wide expanse of University of Maryland Natatorium.

Stockwell's muscled arms churn butterfly strokes through the water, her stars-and-stripes swim cap bobbing down the lane.

Her left leg, crafted from carbon fiber and titanium, goes unnoticed in the poolside clutter of warm-up jackets, wet towels, wheelchairs, metal crutches and folding blind canes.

At the U.S. Paralympics Open Swimming Championships last weekend, normal was a relative term for the this international group of athletes whose physical conditions range from missing legs and arms to dwarfism to blindness.

On April 13, 2004, Army 1st Lt. Stockwell was leading a supply convoy through the city when her unprotected Humvee was blown into a guardrail by a roadside bomb.

Her left leg was torn away just below the knee, but infection soon ravaged her leg. Surgeons had to saw off the damaged tissue, leaving her with just six inches of limb.

"I didn't feel bad for myself," Stockwell, 27, says. "I was glad it was me and not someone else."

After several months of recovery and rehabilitation, Stockwell walked away from the Army with a Purple Heart medal, medical retirement papers in her file and a prosthetic leg attached to the stump she affectionately calls, "Little Leg."

Since then, the former competitive gymnast, diver and rower has rediscovered her athleticism.

Just four months after she was wounded, she powered a handbike to a finish at the New York City Marathon.

An ROTC graduate of the University of Colorado, she also returned to the Rocky Mountains to relearn how to ski.

She and husband Dick, who was also an Army officer and was in Baghdad when she was wounded, moved to Chicago, where she began swimming in Lake Michigan as training for triathlons.

"I was drawn to swimming because I didn't have to wear a prosthetic to do it," she says.

Now she's one of 17 wounded Iraq veterans aiming for a spot in the 2008 Beijing Paralympics with the support of a U.S. Olympic Committee program that strives to turn warriors into competitive athletes. She's the only swimmer in the group and one of two women (Kerry Miller competes in volleyball).

The program — funded by the USOC, Visa and McDonald's — is not just about elite athletes with Paralympics potential. More than 400 veterans are involved at levels more recreational than Olympian.

"Making the Paralympics team is a great goal," says John Register, associate director of outreach development for the U.S. Paralympics Team, "but the benefits of playing sports go far beyond competition."

U.S. Paralympics Swimming Team director Julie O'Neill says Stockwell has been making "remarkable progress" but has not yet secured a spot on the squad for Beijing.

Stockwell will need to post global competitive times at the U.S. Paralympics Swimming Team Trials in April to accomplish that goal.

She's focused on making the team, but she also sees the rewards she's already reaped.

"I'd love to have my leg back," says Stockwell, who also learned how to fit other amputees with prosthetics. "But the things I have been able to do have been valuable to me. I live a great life, I have no regrets and don't want to go back to what was before.

"This happened for a reason, and it really doesn't matter if I have a leg or not — I can still do whatever I want to do."

Insurance firms deny amputees new limbs


Coalition pushes bill to mandate coverage
By CLAUDIA PINTO • Staff Writer • May 10, 2008


Since Paul Dale's artificial leg started failing,he has suffered falls, injuring an elbow, pulling both shoulders and breaking a rib.

But Dale's insurance company won't pay to replace the prosthesis.


"I think I deserve the same standard of life as anyone else," said the Columbia man, who lost the majority of his left leg to bone cancer in 1983.

Morgan Sheets, the Amputee Coalition of America's national advocacy director, says Dale's story is a common one.

She said insurance companies often deny people access to an artificial limb by allowing only one prosthesis per lifetime, labeling the more expensive computerized limbs as experimental or capping the benefit at $1,000 or $5,000 when the average cost is $8,000 to $15,000.

The Knoxville-based Amputee Coalition of America is pushing for federal legislation, dubbed the Prosthetic Parity Act of 2008, which would force insurance companies to cover prostheses just as they would cover other critical medical care.

Mary Thompson, spokeswoman for BlueCross BlueShield of Tennessee, said the company doesn't have coverage limits on prosthetic devices and opposes a mandate.

"While the intention of state and federal health-care mandates is usually good, they have significantly increased the cost of health care in Tennessee and the nation, almost always for the privately insured," Thompson said.

Sheets said that when artificial limbs are fully funded it adds only about 25 cents per month to insurance premiums.

"People get insurance to cover catastrophic events. What is more catastrophic than losing a limb?" Sheets said. "I think the general public just assumes that if they lose a limb they'll get a prosthesis, and right now that's not happening."

Limbs allow active lives
Ten states have passed prosthetic parity insurance laws. Sixteen others, including Tennessee, have similar proposed legislation.

"Right now, it's hung up in subcommittee. I don't suspect we'll be able to get it done this year," said Mike Alder, a lobbyist for the Tennessee Orthotics Prosthetics Facilities Inc. "There will be a renewed effort next year."

Alder said the insurance industry is resisting the legislation to control costs, but he argues that providing artificial limbs will be more cost effective in the long run.

"To confine someone to a wheelchair after losing a limb is a sedentary lifestyle," Alder said. "Your health is not going to get better by sitting. People can return to very active lives with prosthetic devices."

Sheets said it isn't known how many people are denied artificial limbs each year.

According to the coalition, there are roughly 1.9 million people with limb loss in the U.S.

Sheets said being denied an artificial limb could have devastating results: People sometimes end up losing their jobs and become confined to wheelchairs.

"They want to be able to do the same things everyone else does," Sheets said. "They want to be able to run around with their kids. They want to drive."

Amputee needs new leg
Dale said these days a rock or a slope could throw him off balance and send him toppling over. He uses a C-Leg, a high-tech prosthesis that uses batteries and a computer chip to better replicate the movements of a real leg. The computer in the leg is malfunctioning and the battery won't stay charged.

"I need a new leg to have a decent way of life," he said.

Dale said his insurance company, BlueCross BlueShield of Georgia, wouldn't pay for a new leg because it's considered experimental.

However, BlueCross BlueShield of West Virginia paid for the exact same prosthesis for Dale eight years ago.

Cynthia Sanders, spokeswoman for BlueCross BlueShield of Georgia, said she couldn't comment on Dale's situation specifically because of privacy issues, but she did say that scientific studies on the advantages of computerized prosthetic devices are limited.

"We will continue to review peer-reviewed medical literature and make changes as evidence warrants," Sanders said.

Sheets said the real issue is insurance companies don't want to pay. A new C-Leg for Dale would cost roughly$45,000.

"That's a ploy being used by insurance companies for the more expensive items," Sheets said. "Medicare has been paying for C-Legs for 10 years. Medicare doesn't cover anything that's experimental."

Dale, 64, said he needs the high-tech leg because he's active. He works 40 hours a week, cuts his own grass and restores old cars in his spare time.

Dale said he has looked into getting his artificial leg fixed, but factory officials said the damage is too costly to repair."I'm not asking for an upgrade," Dale said. "I just want a replacement for what I've got."

Contact Claudia Pinto at 259-8277 or cpinto@tennessean.com.